Thursday, March 26, 2026

The Cost of Chasing Elite

The Sacrifice

There is something deeply painful about understanding what it takes to become an elite cyclist. Not admiring it, not talking about it, not posting about it — but truly understanding it.

I’m not writing this because I think I’ve figured it all out. I’m writing it because I’ve spent enough time chasing it to realize how much it actually costs. I don’t think most people fully see this side of it. It has taken years of introspection — tens of thousands of hours riding alone, pushing max heart rate when there is no one there to see you, alone in thought. I’m not even saying that I fully understand it, because I’m still learning what it takes.

And to be honest, once people do understand the sacrifice, many may decide it’s simply not worth it to them — and I understand that. That doesn’t mean they’re settling. It just means they’re being honest about what they want their life to look like.

But let’s start at the beginning.

The Progression

Most people understand how someone goes from beginner to good. You put in time, you learn, you fail, and you repeat, and if you stay with cycling long enough, you will improve. That part still feels fair.

Even the jump from good to great makes sense because it takes more discipline, more focus, and more consistency. But great to elite is different. A lot of people believe elite cycling is simply what happens when you keep riding for a long time. They think if they just keep logging miles, stacking hours, and grinding, elite will eventually arrive, but that is not always true.

You can ride for years and never become elite. You can train more volume than someone else and still not reach their level. You can give a lot and still stay stuck, because time alone does not create elite cyclists. At some point, quantity stops being enough, and that is when the game changes. From there on, it is not just about how much time you spend on the bike — it is about how well you use that time.

The Lifestyle

Elite cycling is not a level — it is a lifestyle.

People think elite is a performance metric — watts, results, podiums — but it is not. It is a way of organizing your entire life around a standard that most people will never understand. It touches everything: your body, your schedule, your relationships, your recovery, your identity. It stops being something you do and becomes something that starts shaping who you are.

That realization strips away excuses and forces a harder question — not can you become elite, but are you willing to live like someone who has chosen it? My dad taught me that anything worth doing is worth doing well. I wasn’t blessed with much natural talent, but I was taught how to work, so the question becomes: are you willing to devote more to this than anything else — and maybe more than anyone else?

Your life starts organizing itself around performance, and that takes obsession.

The Cost

Elite cycling asks things from your body that ordinary life does not. It asks for effort when you are already depleted, asks you to find another gear when your legs are dead, and asks you to keep going when everything in you is telling you to stop. And the fatigue never fully leaves — it just changes form, until you stop questioning it and start accepting it as part of the cost.

But the physical side is only part of it. The mental and emotional toll runs deeper, and elite cycling can make rest feel guilty, stillness feel threatening, and average feel unacceptable. It can make you feel like you are living in a different world than the people around you, because in many ways, you are.

If you choose exceptional, there will be a cost. There always is. And the cost changes you.  Because to become elite, some other part of your life will suffer, and that is why this path can feel haunting. It leaves marks — on your body, your habits, your relationships, and your identity.

The Reality

And once you know what elite requires, you can’t unknow it. That awareness follows you. It’s there when you skip a ride, when you choose comfort, and when you know you could have done more. It doesn’t leave. And once you truly understand what it takes, it becomes painful in a different way, because if you understand what elite cycling demands, then you understand what it demands from you.

The hardest part is not always the work. Sometimes the hardest part is accepting that you know exactly what must be done — that excuses aren't acceptable. That is why this is both a blessing and a curse — a blessing because it gives you access to a version of yourself most people will never meet, an alter ego, some may say.  And that is the curse — because once you understand this, you will never again be fully at peace pretending average is enough.

Maybe this is why I created EPIC. Because he can do what Eric can not.

The Loneliness

And the deeper you go, the lonelier it gets. That might be the hardest part of all.

Being an elite cyclist is lonely — not “alone sometimes” lonely, but truly lonely. Because almost no one really understands you. They may admire your fitness and your results, but they don’t understand you. They don’t understand why you can’t just skip a ride, why you can’t just relax, why your standards are so high, or why your mind never shuts off.

Accepting that level of sacrifice can make you feel deeply misunderstood. The people around you may see discipline, but they don’t always see what is underneath it — the choices you make, the things you say no to, the way your mind is always measuring whether you are doing enough, and the quiet weight that comes with carrying that standard every day. Once you accept what this life requires, you start living in a way that fewer and fewer people truly understand.

That is not a casual way to live.

The Truth

And maybe that is the clearest truth: people want what elite cycling gives, but almost no one wants to endure what it takes to become it.  Because becoming elite doesn’t just ask for your effort. It demands your body, your mind, your emotions, your time, and your life. It takes over everything.

And once you truly understand that, you may decide you don’t want it after all — and that might be the healthiest decision you could make. Chasing this has come at a cost I still don’t fully know how to measure. But if you still want it, be honest about what you are choosing.

You are not choosing a goal.
You are accepting the lifestyle.
You are acknowledging the cost.
You are willing to feel misunderstood.
And more than anything, you are choosing sacrifice.

Because that is what this has always been about.  Not whether you want to be elite.  But whether you are willing to accept the sacrifice that comes with trying to become it. 

Friday, March 17, 2023

Why NOT me?

For a long time, I asked the question, “why me?” when it came to my health condition. But recently I have started to ask a new question, which is “why NOT me?” 

Maybe it’s like Dr. Sam Beckett’s rationale for who controls his leaping from life to life on Quantum leap - which is that it’s God or Time or Fate or Whatever (GTFW). 


Maybe GTFW knows that I am stubborn and won’t give up -- that I am fighter and will use this diagnosis as a chip on my shoulder to push beyond my limits in all walks of life, in spite of, or despite of, for all that it puts me through. Maybe with my writings or my stories or my actions, I have inspired someone to never give up, no matter how steep the climb. Maybe GTFW know that I have an army of family and friends who fight for me when I am too weak to fight. For all that we have endured over the last 8 years, all the pain, all the tears, all the fears… if I have been a difference maker for just one person, then it is all worth it. Maybe this clinical trial won’t cure me, but maybe it cures a young baby who has been diagnosed with RRP who can avoid a lifelong regiment of surgeries. From that perspective, it’s like saving a life. 

So maybe I was chosen to wear a cape on this EPIC adventure, and therefore, I say “why NOT me?”

Tuesday, January 18, 2022

Finding a rare Tom Brady football card

This is my story of how I found a rare Tom Brady card from early in his career buried in my card collection.   

Maybe it's not the same as ESPN reporting on a story of the Hench family finding rare cards in the attic of their family home in Ohio.  That was one of the most significant baseball card discoveries of all time (would later come to be known as the Black Swamp find), as it included a 1910 E98 Hans (Honus) Wagner which would be graded by PSA as gem mint 10, and have a population of 1.  

And maybe it's not the same as the Al Rosen find back in 1986 that included 75 Mickey Mantle cards from 1952 Topps -- a find that Sports Collectors Digest ranked in 2021 as the most significant sports card find, ever.  

Black Swamp Find Honus Wagner and a 1952 Topps Mickey Mantle

Maybe my find of a rare Tom Brady card buried deep in my collection is not significant to the sports card collectible industry, but it is significant to me -- and this is the story.   

30 Years Ago

My interest in sports card collecting began back in 1984 when I was just a 9-year-old boy growing up in the small town of Kingsford, Michigan.  That year marked the start of my fandom for Dan Marino, Ryne Sandberg, and Michael Jordan.  We had a grocery store just two blocks from my house that was owned by a family friend where I was able to buy packs of cards with my weekly allowance.  

My attention would shift from football cards to baseball cards with the release of the beautiful wood-grained borders of 1987 Topps.  My friends and I would take our bikes from the Little League field at LoDal Park to local card shows at the Birchwood or Midtown Mall.  We lived and breathed baseball.  I still remember my Dad telling me that I should hang on to the Mark McGwire.  As a Cubs fan, I didn't see much American League baseball because it wasn't on TV, but my Dad was reading about McGwire hitting home runs (33 by the All-Star break) and knew that this could have some value.  Of course, this was the start of the "junk wax era" and this card is not as valuable as his 1985 Topps Olympic card, but I digress -- it was still a big part of my youth collecting.  

1987 Topps Mark McGwire rookie card

Once I entered high school, got my driver's license, and discovered the importance of girls, my card collecting would taper off.  By 1991, my common cards were stored in shoe boxes and any card that had a value of more than $1 (which to a kid in the late '80s was a fortune) was safely stored inside a 9-pocket protector page and kept inside 3-ring binders.  

I had four total binders for my prized cards and these binders were all stacked together in a plastic milk crate that I "borrowed" from my job working in the dairy department of the local grocery store.  This milk crate would be moved from my parent's home to college, to my first apartment after college, and then in 2001 to my first house in Menasha, Wisconsin.  Through all of these moves, I might have taken the binders out no more than a handful of times to look at the best of my cards.  

20 Years Ago

As with most kids working in their first professional job, I found myself with a few more dollars in my pocket than when I was a poor college student looking forward to 99 cent Whopper Wednesday.  So in 2002, I decided to check out the local hobby store in the Fox Valley to see what the current sports card landscape had to offer.  

Just a few months earlier, a guy named Tom Brady lead the New England Patriots to their first Super Bowl win over the Greatest Show on Turf (Kurt Warner led St. Louis Rams).  As everyone knows, Tom was a sixth-round draft pick (#199) in the 2000 NFL draft coming out of the University of Michigan.  He took over for an injured Drew Bledsoe in September of 2001 and the rest is history.  

So I decided to hand over $70 at the local card shop in late August and walked out with a box of 2002 Topps Chrome football which featured the current G.O.A.T. quarterback at the time (Joe Montana) on top along with Tom Brady.   Brady had several rookie cards in 2000, but his first Topps card came in 2002.  

When I went home to rip the box, I was left with that lukewarm feeling of not pulling any big hits other than a Detroit Lions Robert Porchert Pro Bowl jersey card -- not exactly striking it rich.  I did pull three Tom Brady cards, which were his base card (#100), his weekly wrap up card (#150), and a ring of honor insert card.  Keep in mind that at the time, he was just an up-and-coming player, so these cards had no real resale value.  And back then, I had no idea what "graded" cards were or the process to submit a card for grading.  I put the rookies and the star cards into my 3 ring binder to protect them, knowing that I really didn't have anything special.  

5 Years Ago

Fast forward to Christmas 2016.  I was feeling a bit nostalgic, so I picked up a box of 1987 Topps baseball and wrapped it up with a label that read "To Eric from Santa" and put it under the Christmas tree.  This rekindled my fondness for collecting cards, and as many 40-somethings do, I began to yearn for my youth by collecting cards that I could not afford as a kid.  I built complete sets of Topps baseball dating back to 1972 and through the end of my collecting days in 1991. 


2 Years Ago

In the process of feeling like a kid again, I started to submit cards to PSA for grading.  If they came back as 9's (mint) or 10's (gem mint) it meant that they were worth more.  I still wasn't planning on ever selling any cards, but knowing that they were sealed and protected forever in that graded condition had some appeal to me.  

So in early 2020, I was going through my 3-ring binders (which had grown from 4 to 90 in just 2 years of my "old man collecting" days) looking for cards to submit for grading.  I was mostly looking for older vintage cards, but I came across the binder that had my modern football cards in them.  


As I paged through, I came to the dozen or so pages that had the 2002 Topps Chrome football cards in them.  First, I saw my Tom Brady weekly wrap up card, which was very off-center and not worth grading.  Then on the last page of the album, I saw that I had four Ring of Honor cards (Steve Young, Richard Dent, Terrell Davis AND Tom Brady).  The Brady looked in decent shape, so I pulled it out of the album so I could insert it into a penny sleeve, then a hard case.  I thought that at best it might come back as a PSA 9 and possibly be worth a few dollars.

1 Year Ago

I sub my PSA cards through a very trustworthy source, who then submits cards on my behalf.  Scott Cowsert and his bulk subs have been my go-to for all grading services for the last few years.  He deals with all the headaches of the actual submission process on my behalf, which I am extremely grateful for.   

When I was filling out the PSA paperwork to send to Scott, I noticed on the back of the Tom Brady Ring of Honor card that it had a serial number on it -- 21/100.  I was bewildered and didn't really know what I had.  After some research, I discovered that the Ring of Honor insert set, also had a parallel refractor version which were all serial numbered.  At the time, the only recent sale was a PSA 9 from 2017 and it was $129.  But that was before the sports card popularity explosion (partially fueled by the COVID-19 pandemic), so I thought mine would be worth just a little more than that if it came back as a 9.  I noted that it would have a value of around $500 once graded and shipped the card off to Scott in mid-November of 2020.  

PSA Sales as or late 2020

In early January 2021, I got a message from Scott noting that the late November sub(mission to PSA) still had not been entered into the PSA system.  Even though PSA was overloaded with work, they were still operating, so this was unusual that it was taking so long.  The panic started to grow day by day, thinking that somehow the cards were lost!    

After a lot of research and trips to the USPS distribution facility, Scott learned that the package with all the late Nov Sub cards in it, showed departing the St. Louis distribution facility, then being scanned back in the next day.  However, then he learned that the package had never actually left St. Louis!  Scott was spending 3-5 hours a day on the phone with USPS trying to get the status of the package and they would not let him show up in person to simply pick up the package.  This went on for weeks as the backlog of package delivery at that USPS distribution facility alone was as many as 100 semi-trailers at one point.  

Eventually, the package showed up in Des Moines, then Los Angeles, then Pasadena, then Newport Beach on February 16.  And I was able to take a deep sigh of relief that the cards were safely at PSA.  I am so thankful that Scott was persistent on this and was able to stay in constant communication with all those that had cards in that sub.  Now the waiting period would begin, which was assumed to be 9-12 months based on the backlog of submissions at PSA.  I quickly tried to forget about my cards in hopes that by some miracle, they would be ready by Christmas.  

Present Day

Just before Christmas, I received a message from Scott about my cards.  

He said that PSA had notified him of an upcharge on the grading of the Tom Brady card in the amount of $2,000.  I was riding on my bike trainer at the time and I thought maybe I had misread the message.  After my ride, I read it again and saw that the amount was correct, the upcharge was $2,000!   PSA charges more to grade a card with a higher value, which is outlined in their pricing.  For premium options, they charge $2,000 to grade a card that has a declared value of between $25,000 and $49,999.  

PSA premium grading price scale

PSA had graded the card as a GEM MINT 10, and they were estimating the value to be as much as $50,000.  I nearly passed out.  Not figuratively, but literally.  

Here are the PSA grades and pop reports for Brady's cards in the 2002 Topps Chrome set.  

Regular series

Insert cards 

And appeared on these short-printed inserts or serial-numbered parallel cards

So of all the cards that have been graded, the only card to have a population of 1 is my Ring of Honor Refractor, shown below.  PSA cert 58640711.


A total of 11 copies of this card have been submitted to PSA.  3 have received a grade of 8 and 6 have been graded as a 9, with one graded as authentic.  Then there is the single card with a grade 10, mine.  

PSA Population Report as of January 18, 2022

While we are specifically looking at PSA grading, I have also researched BGS grading population reports as well.  Of the 7 cards that have been submitted to BGS, none have ever been graded above a 9.0.  


Next Steps

The card was delivered to me on January 18th.  After a few days of intense research of the top auction houses, (Goldin, Pristine, PWCC Premier, Mile High, and Robert Edward Auctions) I decided to send the card to PWCC for their monthly Premier Auction.  I had pondered holding on to the card until Brady is inducted into the Hall of Fame.  At that point, the card may have increased in value, but considering the time value of money, I wanted to move the card now, versus waiting to capitalize on his stardom a decade from now.

What do I think the card is worth?  Well, let's review what it has going for it.
  • It's Tom Brady.  He is the GOAT and that is undeniable. 
  • With his retirement announcement, fans, collectors, and investors are all swarming to own any of his collectibles.  
  • It is from the 2002 Topps Chrome set, which was the first time he appear in Topps Chrome.
  • The card was a limited issue, only 100 printed.  How many more are sitting out there in GEM MINT 10 shape just waiting to be graded after 10 years?  So it is a good bet that it may stay as pop 1 forever.  
  • The most recent sale of a grade 8 (shown below) was $6,055 as of late November.  If a grade 9 is worth 1.5x-2x more than a grade 8, and a grade 10 is worth 5-10x more than the price of a grade 9, the card may be worth six figures, to the right buyer.  
PSA most recent sale November 29, 2021

Final Words

So many people my age thought they might retire on the value of their card collection.  But with the mass overproduction of cards in our youth, the supply is plentiful and the demand is just not that great to drive up the price.  To me, 99.99% of my collection has more sentimental value than the actual value and I don't plan on selling.  And even though I could just sit on this Tom Brady card for 40 more years and see what happens, I think the smart move is to sell now and that is what I will do.  I hope that the card finds the right new home to someone that is a Tom Brady fan, and if that person is a fellow Michigander then that would be even better.  

EJC

Update - 2/3/22

The auction went live at 6pm on February 3rd and runs through February 19th.  


Monday, April 12, 2021

My Dad's Favorite Football Players

Growing up in central Upper Michigan, Green Bay, WI is only 100 miles away so many people are Packer fans. Detroit is 500 miles and the Mackinac bridge is the only thing that connects upper and lower Michigan. In fact, the Minnesota Vikings are closer to parts of the UP than Detroit, yet die hard locals are still Detroit Lions fans. This includes my Dad. 

Dennis Charette was born in 1951 in Kingsford, MI and has made it his home for the past 69 years. He has suffered through a lifetime of bad Lions football, which includes the longest draught in football for Super Bowl appearances. They last appeared in 1957 when they beat Cleveland in the NFL Championship Game, which predated the Super Bowl. 

Since then my Dad has had two favorite Lions players, ironically both running backs that wore #20, played college ball in the state of Oklahoma, both here Heisman Trophy winners in their junior seasons, both were rookies of the year and they shared the same initials (B.S.) -- Billy Sims and Barry Sanders. When comparing each of their first two years in the league, they had very similar numbers. Sims had 2,740 yards with 26 touchdowns and Sanders had 2,774 yards and 27 touchdowns. Coincidentally, both players had very short NFL careers, with Sims retiring at age 29 due to injuries and Sanders retiring at age 30 by choice. 

When I was 6 years old, my parents went to a Lions-Packers game at Lambeau Field. The morning of the game, my Dad was in the elevator of the hotel going down to the lobby and who stepped in but Billy Sims himself. As luck would have it, my dad had bought me a gray lions zip up sweat shirt and it was in his hand. Billy was kind enough to autograph the sweatshirt. While I would grow up to be a Miami Dolphins fan (because of Dan Marino) this memento was has been pretty special to me all my life. 

As the signatures have faded over the years, my Mom will periodically go over them with a Sharpie to bring them back to life. She still has it in the cedar chest at their house and I bring it out from time to time when I visit. 

So the completion of the Billy Sims 1981 Topps rookie trifecta has brought back a lot of memories from my youth. I hope you enjoy the story and that this brings back memories of when you were a kid and you had special sports related memories with your father. 
  • #100 Bill Sims base card PSA 10 pop 60 
  • #338 Detroit Lions Team Leaders / Checklist PSA 10 pop 8 
  • #473 Billy Sims Super Action PSA 10 pop 13 
    

Monday, March 29, 2021

2nd Clinical Trial at NIH

It's official!

I have been enrolled as patient #4 in the NIH clinical trial for PRGN-2012 and will begin in May.  If this is the cure for RRP, not only will it be life-altering for me, but it will pave the way for all others after me.  

Sunday, March 7, 2021

The most difficult month of my life

This is the second part of the saga, where for a 10-day period, I wasn't sure how long I had to live.  

When I last left off, my oncologist at University of Minnesota had performed a flow cytometry which resulted in ruling out leukemia.  They speculated that the interferon medication which I take for my recurrent respiratory papillomatosis had inexplicably reduced my white and red blood counts and my platelets.  So I planned to skip two more interferon treatments and test my blood again with expectation that my counts would rebound to their normal baselines.  

The CBC results on Tuesday, February 23rd did not show any improvement.  So the next step was to see a hematologist as soon as possible.  There was something causing my anemia and thrombocytopenia and my oncologist wanted to get the expert opinion of someone who specializes in diseases of the blood and blood components.  

Two days later I was back at University of Minnesota.  It was now Thursday, February 25th.  

My hematologist informed me that on the latest blood analysis, there were 15% of "other" cells appearing in the manual differential.  The "other" were classified as abnormal lymphocytes, which are immature forms of the cells which get released from the bone marrow into the circulation.  If 20% or more of the blood cells in your bone marrow are immature, you may be diagnosed with Acute Myeloid Leukemia (AML).  Treatment for AML involves multiple rounds of intensive chemotherapy.  It may go to into remission, but there is a chance it returns and while further chemotherapy treatment is possible, it likely will not be effective.  At that point, options are reduced to stem cell (bone marrow) transplant or clinical trials.  

Patients with the most lethal form of AML typically survive for only four to six months after diagnosis, even with aggressive chemotherapy.  The 5-year survival rate for people 20 and older with AML is about 25%.   I was within 5% of the level in which AML is diagnosed.  

Earlier results showed some levels of abnormal cells -- this is why the flow cytometry was performed in the first place.  But this was the first time that they showed up in this measurable amount.  To confirm the suspicious of AML, the next step was to conduct a bone marrow biopsy. 

After getting the news, I was frozen with fear. Before leaving the hospital I had to sit down as I needed a minute for everything to sink in.  I sat there for a solid 20 minutes before I was able to go to the parking lot and drive home.    

Six (long) days later I was back at University of Minnesota.  It was now Wednesday March 3rd. 

Bone marrow has a fluid portion and a more solid portion. In bone marrow aspiration, a needle is used to withdraw a sample of the fluid portion. In bone marrow biopsy, a needle is used to withdraw a sample of the solid portion.  The bone marrow fluid and tissue sample are usually collected from the top ridge of the back of a hipbone.  They first start by numbing the area, then they make a small incision in the skin of your lower back and insert a hollow needle through the outer bone into the marrow to collect the liquid, then a larger needle is used to collect a sample of the tissue.  Since I am young(er) and a (former) runner, my bones were very hard.  

With a lot of pressure to puncture the outer bone, the solid portion of the marrow was extracted.  However, when they performed the aspiration, it resulted in a "dry tap" which means they were unable to get any liquid out.  They tried several times in different places but were unsuccessful  A dry tap occurs only about 3% of the time, of which 92% of the time results in some form of pathology, which could be leukemia  So here I was, still days away from having the formal results, and I was already trending the wrong direction.  Fortunately, they were able to extra enough solid portion for the analysis. 

The procedure only took about an hour and I liken it to getting a tattoo where you are filled with adrenaline that eventually wears off and you crash.  For the next 36 hours it felt like I had a spike in my lower back.  When Rachel changed the dressing she said that it looked like I had a hole drilled into my back.  The hematologist said that it could take three to five days for result to come back.  More waiting.

I did have some positive news that came from the CBC which was performed before biopsy.  My lymphocytes were back up and my blood showed no "other" cells.  My basophils, eosinophils, monocytes and neutrophils were all in the low range of normal.  My platelets were at 105, which was a major improvement from the 86 they were at back on February 2nd when this whole ordeal began.  And my RBC was 4.06 -- still below the normal range but up from 3.6 a month earlier.  I tried to reserve our judgement until the biopsy results came in, but with no "other" cells showing up, maybe leukemia would once again be off the table. 

On Friday, March 5th I was heading south in the late afternoon, driving toward Des Moines, Iowa where I was going to pick up a new beagle puppy early the next morning.  It was the 22nd anniversary of the day I left Michigan Tech as a electrical engineering graduate.  While listening to the Cubs preseason game against the Cleveland Indians, I saw a notification on my phone from the University of Minnesota medical app.  With a deep breath, I picked up my phone and opened the message. 

You know how there are some moments in your life that you will never forget where you were when you got certain news?  This was one of them.  I was in Story City, Iowa.  How fitting.

FINAL DIAGNOSIS:
Bone marrow, left posterior iliac crest, decalcified trephine biopsy, aspirate clot, touch imprint, and peripheral blood smear shows nincrease in myeloid blastsno abnormal myeloid blast, no aberrant immunophenotype on T cells, no morphologic or immunophenotypic evidence of hematolymphoid neoplasm with rare lymphoid aggregates, not diagnostic of lymphoma

It's not leukemia.  For the 2nd time. 

A little while later while at a rest stop, my hematologist called to confirm that the biopsy and aspiration looked normal.  She still did not know what caused the abnormal counts and appearance of immature cells, but it definitely was not a result of AML.  

I can positively, definitely say, without a shadow of a doubt, I do not have leukemia at this very moment in time.  Apparently I just had to drive to Iowa to find out. 

All of my doctors (my hematologist, my oncologist, my endocrinologist and my otolaryngologist) will meet early next week, but they all believe that this was caused by my continued use of interferon.  Since interferon alfa is a type of targeted cancer drug, patients usually don't take it for extended periods of time (like I have).  So the long term effects aren't really known.

So what is next?  If this was caused by my interferon, which I need for my RRP, does that mean I go back to having surgery every 6 weeks?  I certainly hope not.  I should find out in the next week if I am eligible for another clinical trial at NIH with Dr. Clint Allen.  As part of the trial, I would have to stop taking interferon anyway, and travel to Bethesda, MD where a trial vaccine would be administered.  I am hopeful that this is the answer, the cure, and I won't ever have to take interferon ever again.  

I thought that I might be writing the epilogue of my life story, but it turns out there are still many more chapters to be written.  

You shoot me down but I won't fall, I am titanium.  

Sunday, February 14, 2021

Fight like hell

Four years ago was a turning point for me when I began a lifetime battle to fight for my life.  

Two weeks ago, I thought that I might have finally lost the war.

As chronicled in The Battle Wages On, the last hope for treatment of the incurable virus (Recurrent Respiratory Papillomatosis) plaguing my esophagus and lungs was a weekly injection of Interferon Alfa-2B.  This drug is administered in the form of a weekly subcutaneous injection.  

In one study, 70% (46 of 60) of patients had a response (35% had a complete response and 40% had a  partial response).  In my own case, for the 2 years before taking interferon I was having full sedation surgery every 6.77 weeks to have the virus removed.  Since starting the drug protocol 4 years ago, I have averaged surgery every 13.86 weeks and in the last two years the average has increased to 19.17 weeks.  

While these would be considered positive results, they do not come without a price.  Not only has the drug not prevented the spread of the virus into my lungs, I also have to deal with the side effects.  The most common side effects of interferon with severe expression include:   

  • Anemia, a condition in which you lack enough healthy red blood cells to carry adequate oxygen to your body's tissues and organs.
  • Thrombocytopenia, a condition in which your bone marrow makes too few blood platelets used for clotting. 
  • Leukopenia, a condition in which there is a decrease in disease-fighting (white blood) cells in your blood.

On Sunday, January 31st I started coughing up deep red, bloody mucus. Not just once but about a dozen times over the course of the entire day -- something I have never done before.  So I made an appointment to see my ENT the very next day, suspecting it could be an upper respiratory infection, or bronchitis.

A direct laryngoscopy showed that the virus was growing back with some irritation and redness in a mass in my trachea.  While this could have produced the bloody mucus, my doctor also ordered bloodwork and a CT scan of my chest.  Before I started taking interferon, my baseline for white blood cells was low, but this was reduced further as a side effect of the weekly injections.  The labs on this day showed the same, but for the first time ever my red blood cells were low, as were my platelets.  And the CT scan showed that I had a slightly enlarged spleen.  

I had taken my interferon on the same morning as the bloodwork so there was a chance that the labs were just showing the side effects of the interferon.  But there was also a chance that I had leukemia.

Leukemia.  

More specifically, acute myelogenous leukemia (AML) is a cancer of the blood and bone marrow.  The word "acute" denotes the disease's rapid progression.  The sixth-leading cause of cancer deaths has a  five-year survival rate of 65%, meaning 1 in 3 people will not make it to the five-year mark.  The median age of diagnosis being 66.  I just turned 45 in November,

Fast forward a week and I had more labs drawn, which showed very similar results.  Low WBC, low RBC, low platelets and there were rare small atypical looking lymphocytes with distinct nucleoli and rare form with irregular nucleus is seen, also a rare immature - appearing cells suspicious for a blast is seen.  

In the case of AML, there is an overproduction of abnormal myeloblasts. These cells are unable to develop further into mature white blood cells.  And I had some suspicious looking blasts in my test results.  

Now the thoughts of leukemia loomed even larger. 

Leukemia.

The next step was to conduct a flow cytometry which can identify the type of cells in a blood sample, including types of cancer cells based on either the presence or the absence of certain protein markers (antigens) on a cell’s surface.  For the second time in two days, it was back to the hospital for more blood draw.  With low blood pressure, taking 7 vials of blood took much longer than what it normally does.  

Finally on February 12th, twelve days and twelve sleepless nights after my first symptom, I got the test results.

There is no immunophenotypic evidence of non-Hodgkin lymphoma, lymphoid leukemia, or high grade myeloid neoplasm.  No aberrant immunophenotype on T cells.  CD34 positive blasts are rare to absent.

I had to read this sentence about a dozen times and had to Google all of the terms to make sure I fully understood what it said.  My oncologist further translated this to:

The flow cytometry was reassuring. It's pretty clear you don't have leukemia.  I think this is largely driven by interferon.

I don't have leukemia.   Deep sigh of relief. 

Our next course of action is to hold the interferon treatments for a while and then retest labs.  If my numbers bounce back, then I would know it is the medication.  If they don't, then I am back to square one.  But let's say that it is the interferon that is causing my low counts... but I need the medication to slow the growth of the RRP virus.  This is known as a catch-22.  Are the benefits of the drug more than the side effects they produce? 

When the weight of the world feels like it is bearing down on you, it makes it very difficult to keep fighting.  For the first time in my life I can understand why some people give up.  When faced with the possibility of having leukemia, part of me wanted to just accept it.  It was very frightening.

But more of me wanted to fight.

At the 2014 Espy awards, Stuart Scott famously said, "So, live. Live. Fight like hell. And when you get too tired to fight then lay down and rest and let somebody else fight for you. That's also very, very important. I can't do this "don't give up" thing all by myself."  

With family and friends, I will never be alone in this fight, no matter what comes next. 

You shoot me down but I won't fall, I am titanium.  

Wednesday, December 23, 2020

Top 30 Christmas Songs of All Time

Christmas has always been very meaningful to me.  From my earliest memories of our family gatherings to more recent times watching Rachel cut a balsam tree down and dragging it through the snow for the family to decorate and every memory in between -- this is my favorite time of the year.  

For a few years I have been contemplating building a list of my favorite Christmas songs but it was not until this year that I took the time to put pen to paper.  What better than a global pandemic to conduct research for such an endeavor!  And thus my project of listing out the top Christmas songs of all time was born.  


But what defines a Christmas song?  It is not merely a religious song that you could hear on any given Sunday in a Catholic church.  For this list, it is defined as any song that features the word Christmas, appears in a Christmas movie, makes reference to Santa Claus or is about the a true meaning a Christmas -- the birth of Jesus!

Once I had the definition clear in my head, then I needed to figure out which Christmas songs appealed to me the most.  The basic question I kept asking myself was 'which songs could I listen to on repeat if I were 16 years old again bagging groceries at Econo Foods for a 9 hour shift in December and Christmas songs were on endless repeat?'  

That doesn't mean that the list only contains classical Christmas songs, or even those created before my grocery bagging career started in 1991.  This is an all encompassing list ranging from the 16th century until present day. 

Here is what I what I came up with.  Read on and see if you agree. 

30. Feliz Navidad by Jose Feliciano - This festive song is a Christmas mainstay but had it's ranking hurt by its repetitive nature.  There are only 20 unique words sang over and over for 3 minutes.  

29. Do They Know It's Christmas? by Band Aid - An often forgotten collaboration from 1984 included such stars as Phil Collins, Boy George, Sting, George Michael and others raised $24 million for starving children in Ethiopia.

28. Santa Claus Is Comin' to Town by Bruce Springsteen - The Boss recorded the live version of this Haven Gillespie song just 17 days after I was born in 1975 and still today it receives the most airplay of all renditions.

27. Wonderful Christmastime by Paul McCartney - This original Christmas song was recorded by McCartney as part of his solo career in 1979 after the final album from Wings was released but the synthesizer 

26. God Rest Ye Merry Gentlemen by MercyMe - Dating back to the 1700's, this song is also known as Tidings of Comfort and Joy and makes the list with a version by MercyMe from their 2005 album The Christmas Sessions, 

25. Blue Christmas by Elvis - First rerecorded in 1948, this song was made famous in 1957 when the King recorded it for his 1957 Christmas album. 

24. I'll Be Home for Christmas by Bing Crosby - Recorded in 1943, this classic Christmas song features a soldier writing a letter to his family from overseas during World War II that he will be home for Christmas, if only in his dreams.

23. Believe by Josh Groban - From the Polar Express soundtrack, this song reached the top of the Billboard adult contemporary chart and received a Grammy in 2006 for best song written for a motion picture

22. Hark the Herald Sing by Rebecca St. James - This is modern take of the song from the early 18th century appears on the Unexpected Gifts: 12 New Sounds Of Christmas album from 2006.

21. A Mad Russian's Christmas by Trans-Siberian Orchestra - This song is literally impossible to describe as it includes everything from a soft intro to a crazed paced piano and rock guitar riff with everything in between. 

The Top 20

20. Linus and Lucy by Vince Guaraldi - This song from the American jazz pianist gained popularity in 1965 as part of the Charlie Brown Christmas special. 

19. This Christmas Time by Samantha Hooey - This song was featured in a 2017 Hallmark Christmas movie entitled Christmas Next Door.

18. Mele Kalikimaka by Bing Crosby - From the Hawaiian phrase meaning "Merry Christmas," this song was recorded in 1949 and was featured prominently in a Clark Griswold dream sequence during the 1989 movie National Lampoon's Christmas Vacation.

17. Rockin' Around the Christmas Tree by Brenda Lee - Recorded in 1958 by Lee when she was only 13 years old, most people today associate this song with the 1990 movie Home Alone during a scene when Kevin (McCallister) stages a holiday party to help ward off burglars. 

16. Please Come Home for Christmas by Eagles - This song from 1960 has been covered by many artists including Bon Jovi and Martina McBride but the best version was the Eagles cover in 1978,

15. Have Yourself a Merry Little Christmas by Judy Garland - This song was written for the 1944 musical Meet Me in St. Louis and made the American Film Institute top 100 songs of the last 100 years.

14. A Holly Jolly Christmas by Burl Ives - This song appeared in the 1964 Christmas special, Rudolph the Red-Nosed Reindeer that also featured Burl Ives as the narrator.

13. Mary, Did You Know? by Cimorelli - Written in 1984, this modern a cappella version is best described as haunting.

12. Christmas Eve / Sarajevo by Trans-Siberian Orchestra - This powerful and fast paced acoustic Christmas song features their take on 1914 Ukrainian folk song Carol of the Bells.

11. Joy to the World by Faith Hill - First published over 300 years ago, this song has many versions with the best coming from Faith Hill in 2008.

The Top 10

10. Angels We Have Heard on High by Chris Tomlin - This Christmas song about the birth of Jesus is sung to the hymn Gloria, with this version recorded for the 2009 album Glory in the Highest.

9. White Christmas by Bing Crosby - Released in 1942, this is the best selling single of all time (50 million), which is ahead of Elton John's Candle in the Wind 1997 by a whopping 17 million!

8. Boughs of Holly by Trans-Siberian Orchestra - This is a modern rock take of the 16th century Welsh song Deck the Halls.

7. Silent Night by Michael Bublé - Witten in the early 1800's in Austria, this song was made most popular by Bing Crosby as the 4th best selling single of all time, but the Bublé version is the rendition that makes this list. 

6. It's The Most Wonderful Time Of The Year by Andy Williams - From 1964, this song about typical Christmas traditions makes reference to Charles Dickens' A Christmas Carol with the lyrics "telling of scary ghost stories."

5. Let it Snow, Let it Snow, Let it Snow by Dean Martin - Though first released in 1957 by Frank Sinatra, the (better) version that makes this list is by Dean Martin from 1959.

4. O Come, All Ye Faithful - Chris Tomlin - This song was translated into English from the original Latin lyrics in the mid 1700's and has been covered many times. 

3. Christmas Canon by Trans-Siberian Orchestra - From their 1998 album The Christmas Attic, this song features a children's choir and is one of the best selling Christmas songs of all time.  

2. Let it be Christmas by Alan Jackson - From the 2002 album of the same name, this song features lyrics promoting the notion that the feeling of the Christmas season should continue throughout the entire year. 

And the #1 Christmas Song of all Time is... 

1. It's Beginning to Look a Lot Like Christmas by Perry Como - This song from 1951 celebrates a simpler time when Christmas decorations appeared in front windows of department stores.

Missed: 

Wednesday, December 16, 2020

2020 Christmas Movie Challenge

Last year I watched a Christmas movie on November 6th.  

I immediately felt full of the Christmas spirit and wanted that feeling of joy and hope to continue.  So I watched another Christmas movie.  And another and another and so on and so forth.  Thus the 50 Christmas Movies in 50 Days Challenge was born!  The plan was to average watching a Christmas movie once a day for a span of 50 days that would culminate with watching A Christmas Story on Christmas Day.  

2020 has been a year where normal is not normal as we are living during a time of pandemic.  So many people started putting up Christmas decorations earlier than ever before because they were looking to embrace that same joyous holiday feeling during a year that has been filled mostly with despair. 

So how could I improve upon last years challenge?  Not that bigger is always better, but the definition of a challenge is that it should be, well, challenging.  Without a notion of a plan, I watched my first Christmas movie on October 27th.  Quickly I realized that it was exactly 60 days until Christmas.  And thus the 60 Christmas Movies in 60 Days challenge was born.
Last year I just one simple rule -- that I had to watch 50 Christmas movies in 50 days -- no more, no less.  This year I expanded on that with just one more rule, which is more of a guideline.  I want to try to not be more than 2 movies ahead (or behind) schedule.  The rationale was that this was not about binge watching eight or 10 movies in a weekend and lapsing until the following weekend.  This is because I want to embody the season on a daily basis, not in mass quantities and then lapse back into despondency or gloom for days at a time.

Last year I was scouring Netflix, Amazon Prime and Hulu and toward the end of the challenge the quality of movies was very poor.  This year the quality of movies vastly improved as I invested in the frndly app which includes the Hallmark family of channels. 

What are some observations for what comprises a Hallmark Christmas movie?  It will contain 3 or more of the following scenarios.
  • A successful business person working in the big city returns home and stays there to work
  • Someone rediscovers the Christmas spirit after having a reason to be swear it off 
  • A single parent who had shied away from love, finds it again
  • A famous country movie star returns to their home town incognito 
  • Some sort of festival, parade, fund raiser or holiday event needs to be planned and there is likely only a matter of weeks to pull it all off
  • A kiss happens between the two main characters in the final 30 seconds of the movie, though they may have attempted to kiss earlier only to be interrupted 
  • A struggling small business in financial hardship is saved just in time for Christmas
  • A young 30 something person is up for a promotion that they are far from qualified for at that age
  • There is a snow storm that forces people to remain in town for longer than planned
  • Will be filmed in Canada, but have a plot that includes New York City + (Vermont, Tennessee or Montana)
  • Will feature a former child star, a soap opera actress or someone who has appeared on How I Met Your Mother or an extra on CSI including Candace Cameron-Bure, Lacy Chabert, Sarah Lancaster, Erin Cahill, Brooke D'Orsay, Ashley Williams, Brooke Nevin, Erin Krakow,  or Rachel Boston
  • There will be plenty of hot cocoa drank and seldom will there be alcohol 
  • It will only take (as many as) 12 days to fall in love, spanning the 12 days of Christmas
  • Either a snow man or a snow angel will be made
  • There will be a Christmas tree lighting ceremony
  • There will be an inn or lodge that may be in financial hardship, be passed down in the family or have other sentimental value
  • There will be a man who looks just like Santa Claus and may even serve as Santa for the town this season and you are lead to believe he is the real Santa but will mysteriously vanish on Christmas Eve, assumedly heading back to the North Pole to deliver presents
  • Son inherits fathers company and either struggles to find himself in his fathers successful shadow or must pass a series of challenges to prove he is worthy of taking over.
  • With their relationship in the budding stage, the lead female will uncharacteristically become clumsy and fall into the arms of the lead male and create an awkward moment in which they both realize that they are falling in love with each other and should kiss, but are preempted by the females former love interest.  
Additions from collaboration with Gina DeMuro Zeafla
  • There will be a misunderstanding approximately 20 minutes before the end of the movie which pulls the two love interests apart, leaving little time for the reconciliation and falling in love at the final scene.
  • The frequent “impossibly beautiful but stubborn daughter trying to save her family’s farm or small shop from bankruptcy, only to be annoyed by the rich business man who came to most-likely develop the land.”
  • Handsome widower with permanent 5-o’clock shadow and one bitter 11 year old daughter learns to love again after perky corporate climber is forced to come to small town to sell the family bed and breakfast after the death of her estranged father.
List of Movies Watched (so far)
  1. Day 1: Oct-27 Christmas in Evergreen: Tidings of Joy
  2. Day 2: Oct-28 Christmas in Evergreen
  3. Day 3: Oct-29 Chateau Christmas
  4. Day 4: Oct-30 'Tis the Season for Love
  5. Day 5: Oct-31 Christmas in Evergreen: Letters to Santa
  6. Day 5: Oct-31 Christmas Scavenger Hunt
  7. Day 6: Nov-01 Christmas Tree Lane
  8. Day 8: Nov-03 Nostalgic Christmas
  9. Day 8: Nov-03 A Blue Ridge Mountain Christmas
  10. Day 10: Nov-05 Rocky Mountain Christmas
  11. Day 11: Nov-06 Fir Crazy
  12. Day 11: Nov-06 On the Twelfth Day of Christmas
  13. Day 12: Nov-07 It’s Christmas, Eve
  14. Day 12: Nov-07 Small Town Christmas
  15. Day 13: Nov-08 A Merry Christmas Match
  16. Day 13: Nov-08 Never Kiss a Man in a Christmas Sweater
  17. Day 14: Nov-09 Christmas in Love
  18. Day 15: Nov-10 Most Wonderful Time of the Year
  19. Day 17: Nov-12 Christmas at the Plaza
  20. Day 18: Nov-13 Christmas Connection
  21. Day 18: Nov-13 A Cookie Cutter Christmas
  22. Day 20: Nov-15 Miss Christmas
  23. Day 23: Nov-18 A Timeless Christmas
  24. Day 24: Nov-19 A Godwink Christmas
  25. Day 25: Nov-20 A Wish for Christmas
  26. Day 25: Nov-20 A Christmas in Tennessee
  27. Day 26: Nov-21 Christmas On Ice
  28. Day 26: Nov-21 Feliz NaviDAD
  29. Day 27: Nov-22 A Royal Christmas
  30. Day 27: Nov-22 Let it Snow
  31. Day 28: Nov-23 Christmas In Vienna
  32. Day 31: Nov-26 The Christmas Cure
  33. Day 33: Nov-28: Just in Time for Christmas
  34. Day 34: Nov-29: With Love, Christmas
  35. Day 34: Nov-29: Return to Christmas Creek
  36. Day 34: Nov-29: Holidate
  37. Day 35: Nov-30: Christmas Made to Order
  38. Day 37: Dec-2: Christmas Homecoming
  39. Day 38: Dec-3: Check Inn to Christmas
  40. Day 39: Dec-4: Northern Lights of Christmas
  41. Day 40: Dec-5: Sharing Christmas
  42. Day 41: Dec-6: Sleigh Bells Ring
  43. Day 42: Dec-7: Two Turtle Doves
  44. Day 44: Dec-9: A Godwink Christmas: Second Chance, First Love
  45. Day 45: Dec-10: Enchanted Christmas 
  46. Day 47: Dec-12: A Godwink Christmas: Meant for Love
  47. Day 47: Dec-12: Christmas Next Door
  48. Day 48: Dec-13: Christmas On My Mind
  49. Day 48: Dec-13: Christmas Incorporated
  50. Day 48: Dec-13: Time For Us to Come Home for Christmas 
  51. Day 51: Dec-16: Unlocking Christmas 
  52. Day 52: Dec-17: Sense, Sensibility & Snowmen
  53. Day 53: Dec-18: The Sweetest Christmas 
  54. Day 54: Dec-19: Christmas Waltz
  55. Day 55: Dec-20: Christmas Land
  56. Day 57: Dec 22: The Mistletoe Secret
  57. Day 58: Dec 23: Christmas Under the Stars
  58. Day 59: Dec 24: Project Christmas Wish
  59. Day 59: Dec 24: The Family Stone
  60. Day 60: Dec-25: A Christmas Story

Monday, December 7, 2020

Topps Living Set Chicago Cubs Team

UPDATED June 1, 2023

I will be the first to admit that when they initially rolled out in 2018, I was not a fan of the Topps Living Set.  I think that stems from my overall dislike of baseball card companies these days that print cards of former (non active) players mixed into the regular issue sets.  I guess I am more of a traditionalist where the checklist was comprised of active players and maybe a  manager card from the 80's.  

While my opinion has not changed on current cards, I do also understand that the purpose of the Living Set IS to have a mix of players from all generations.  So I decided to start a PSA 10 set of my favorite team, the Chicago Cubs especially since the rookie card of Nico Hoerner was in the set and he is one of my two favorite current Cubs.

Building this set is not to get rich or to turn a profit.  It’s purely for the love of the sport and my team.  And to remind myself that collecting cards should be fun and bring joy to my life which I’ve noticed that waiting for the next Cubs player to be released has done. 

I don't have numbers for percentages of how frequently modern cards get graded as Gem Mint 10.  But for the Topps Baseball Living Set from 2018 to 2020, of the 84,716 (61,948 + 19,826 + 2,942) cards received by PSA for grading, 57,042 (40,755 + 14,064 + 2,223) have come back as PSA 10.  That is 67.33% or 2 out of every 3 cards subbed on average have graded Gem Mint 10.  So building a PSA 10 run should not be that difficult but it will still be a fun project with no end. 

My only suggestion would be that I would like to see a voting process where fans could determine that players from each team who would get a card.  That would help to avoid the Brandon Morrow's of the world being included before Mark Grace and Ron Santos. 

Chicago Cubs Checklist (with print runs) last updated January 26, 2023

2018
  • ✓ 5 Ian Happ (PR=3,042) 
  • ✓ 30 Brandon Morrow (PR=5,585) 
  • ✓ 64 Ryne Sandberg (PR=7,212)
  • ✓ 67 Anthony Rizzo (PR=5,568) 
  • ✓ 83 David Bote RC (PR=5,345) 
  • ✓ 103 Javier Baez (PR=4,499) 
2019
  • ✓ 127 Kris Bryant (PR=5,361)
  • ✓ 210 Jason Heyward (PR=2,573)
  • ✓ 217 Ernie Banks (PR=5,406)
  • ✓ 266 Kyle Hendricks (PR=2,074) 
2020
  • ✓ 310 Nico Hoerner RC (PR=3,523)
  • ✓ 323 Willson Contreras (PR=2,052) 
  • 352 Alec Mills (PR=1,886)  
2021
  • ✓ 429 Craig Kimbrel  (PR=1,780)
  • 453 Patrick Wisdom (PR=1,547)
  • ✓ 473 Frank Schwindel (PR=1,764)
2022
  • ✓ 516 Marcus Stroman (PR=1,686)
  • 519 Fergie Jenkins (PR= 2,589)
  • 547 Seiya Suzuki (PR=3,340)

My current PSA 10 collection.